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Continue reading →: Going Backward, Moving ForwardThe fight against Parkinson’s does not always proceed in a straight line. There are advances and setbacks…gains and losses. Here are examples of each.
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Continue reading →: We’re All Just Winging ItAs Parkinson’s continues to defeat (for now) the best efforts of the medical establishment to find a cure, PWP’s are taking matters into their own hands. They’re communicating, offering advice and experimenting outside the boundaries and supervision of the elites. Results are promising but mixed.
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Continue reading →: Brett Favre’s Parkinson’s DiagnosisAnother big name — this time, NFL great Brett Favre — announced he has Parkinson’s. His initial symptoms, and what he believes to be the cause, resonate in my own experience.
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Continue reading →: What I’ve Learned From 16 Months With Parkinson’sAbout a year-and-a-half after my diagnosis, I’m far from a Parkinson’s expert. But I know a thing or two because I’ve seen a thing or two. Here are some things I’ve picked up from 16 months as a PWP.
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Continue reading →: Should Research Study Results Change My Behavior?There are dozens of Parkinson’s clinical study reports issued every year. Here are two that convinced me to take action and make changes in my life.
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Continue reading →: “Chaos Training” On a Ping Pong TablePing pong can be very beneficial for people with Parkinson’s. Standard play involves two participants and one table. Can it be even better with two tables, 8 players, and balls bouncing in from all directions? A group in Colorado, with an assist from a Portugese researcher, is trying this innovative approach out.
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Continue reading →: Cancer, Customer Service, and Parkinson’s – Part 2 of 2Last week, I wrote of a friend who’s been a cancer patient and a Parkinson’s patient at the same medical center. There’s a big difference in the level of “customer service” you get depending on the nature of your illness. Several initiatives are underway that may improve things for people with Parkinson’s and caregivers.
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Continue reading →: Cancer, Customer Service, and Parkinson’s: Part 1 of 2There can be a wide variation in support for patients at the same medical system, depending on the nature of their illness. Some Parkinson’s patients think we’re getting the short end of the stick.
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Continue reading →: I’m a Hot Lead: Where Parkinson’s and Profit Motive MeetMost of us would pay a large sum to someone who could reverse our Parkinson’s symptoms. And there are a lot of companies asking us to invest our dollars in their proposed solutions. We’re not just patients — we’re prospects.
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Continue reading →: The Hawthorne Effect, Driving, Parkinson’s, and MeWe sometimes behave differently when we know someone’s looking. Can that effect make our roads safer? And what does this have to do with Parkinson’s?
Hello,
I’m Phil Bernstein
I was diagnosed with Parkinson’s Disease on May 25, 2023. At the time, I was only vaguely aware of Parkinson’s — primarily from articles in People about Michael J. Fox. And I didn’t know anyone with the disease.
Now, I know a lot more about the illness, and I’ve joined the Parkinson’s community in my hometown of Portland, Oregon.
I’ve found that writing helps me think through challenges, and this illness definitely qualifies as a challenge. I’ve started Shakin’ Street to help me think through the various obstacles, tools, and resources that a newly-diagnosed Parkinson’s patient encounters along the way.
I hope some of these posts help you address and tackle your own challenges.
Shakin' Street -- A Parkinson's Blog 