We Can Do More Than We Think

On days when my tremor is a little more visible…or my right hand decides it doesn’t want to type…or something else reminds me things will likely progress from “inconvenience” to “uh-oh” in the coming years, I occasionally engage in bouts of self-pity.

A seemingly minor event can throw me for a loop. This week I walked past the exit row while boarding an airplane. During my road warrior days, the exit row my row — 21D on United was my seat.

Not anymore. I can no longer truthfully claim the ability to assist in the unlikely event in an emergency.

Trust me on this: Captain Sully would not want to depend on the current version of Phil Bernstein to open the door after a water landing.

Walking past that exit row caused an extended snit.

So it was a bit of a shame-inducer when I stumbled upon a 2024 obituary for Paul Alexander of Dallas.

Mr. Alexander, it’s fair to say, dealt with a bit more adversity than I have. After contracting a severe case of polio as a small child, he lived in an iron lung for 72 years.

He was one of the last few people in the United States living inside an iron lung, which works by rhythmically changing air pressure in the chamber to force air in and out of the lungs. And in the final weeks of his life, he drew a following on TikTok by sharing what it had been like to live so long with the help of an antiquated machine.


For 72 years, he couldn’t move anything but his head. Although he eventually learned to breathe outside the iron lung for a few hours at a time, he spend the vast majority of his life confined to that metal tube.

While confined to that tube, he graduated from high school, finishing second in his class. “The only reason I didn’t finish first,” he told the Dallas Morning News, “is because I couldn’t do the biology lab.”

He had to fight for two years to convince Southern Methodist University to admit him as a student.

Confined to that tube, at a time when college campuses made little effort to accommodate folks with disabilities, he earned a bachelor’s degree and a law degree from the University of Texas.

He practiced as a lawyer, handling family law and bankruptcy.

Late in his life, he became “Polio Paul” on TikTok, earning more than 300,000 followers. If TikTok is still operating when you read this, you can watch one of his videos here.

@ironlungman

Replying to @Josie While everyone has a unique law school experience, Paul attended UT Law School in a very interesting way… #conversationswithpaul #ironlung #poliopaul #PaulAlexander #QandA

♬ original sound – Paul “Polio Paul” Alexander

In summary, he encountered perhaps the worst circumstances a person could encounter, and lived a life of meaning and purpose.

On days when I begin to show signs of self-pity — and there are likely to be many — I will tell myself the story of Paul Alexander.

If he could deal with THAT, I can deal with this.

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Bonus for Those Who Read to the Bottom

If the Beatles had performed “Stairway to Heaven.”

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Stairway. Bagpipes.

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”A Whole Lotta Love” on guitar and beatbox.

2 responses to “We Can Do More Than We Think”

  1. mmmeow60 Avatar

    Wow.. I’ll never complain again! Well, I will…but that is truly amazing. In your own place in the world, you’re educating and inspiring in the midst of your situation. I lived in Austin for 28 years and never connected this man with Austin (I’d heard of him many years ago)…Austinites should be celebrating this man–who graduated from UT law school in an iron lung!

    Liked by 1 person

    1. shakinstreet.com Avatar

      It’s a hell of a story. I just finished his book — he really could’ve used an editor, but it’s interesting to get his perspective. He was expected to die as a child; just about everyone who was as sick as he was wound up dying quickly. For some reason he lived, and decided to make the most of whatever he had to work with.

      He was very religious, but not afraid to question why God allowed this to happen to him.

      Liked by 1 person

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I’m Phil Bernstein

I was diagnosed with Parkinson’s Disease on May 25, 2023. At the time, I was only vaguely aware of Parkinson’s — primarily from articles in People about Michael J. Fox. And I didn’t know anyone with the disease.

Now, I know a lot more about the illness, and I’ve joined the Parkinson’s community in my hometown of Portland, Oregon.

I’ve found that writing helps me think through challenges, and this illness definitely qualifies as a challenge. I’ve started Shakin’ Street to help me think through the various obstacles, tools, and resources that a newly-diagnosed Parkinson’s patient encounters along the way.

I hope some of these posts help you address and tackle your own challenges.

Let’s connect