Pardon Me

Pardon Me

He was swinging a kettlebell on the second floor of 24 Hour Fitness. Everything seemed normal as he went through each motion. But as soon as he set the weight down, his left arm began to jerk, and his head went back and forth.

I’m not a doctor, but it looked to me as if he might be a fellow Person With Parkinson’s. His motions seemed, to my un-medically-trained eye, like dyskinesia — a common Parkinson’s medication side effect.

Between sets of my own workout, I considered walking over and introducing myself. I ran possible scenarios in my head.

“Parkinson’s?” I’d ask as I stuck out my hand.

Scenario A: “Yep,” he’d reply.

We’d compare notes on diagnoses, medications, exercise regimes, and hassles. We’d discover that we’re both fans of the Johnny & the Distractions.

Maybe he’d subscribe to my blog.

Scenario B: He had Parkinson’s but didn’t wish to discuss it. He was hoping nobody noticed the dyskinesia. Being approached by a stranger in a gym was uncomfortable and embarrassing.

Scenario C: He had a completely different condition and didn’t want to talk about it.

In Scenarios B and C, we’d stare at our feet and awkwardly mumble apologies to each other until I excuse myself, walk to the parking garage and drive away from 24 Hour Fitness, never to return.

Had the two of us encountered each other at Rebel Fit Club, my Parkinson’s-specific gym, the decision would have been easy. While the details may be different for each of us, we’re all in the same general boat. Talking about it is what we do.

It was tougher in a “general public” gym — too much uncertainty. I didn’t know what was causing his motions. Or how much he knew about what he had. Or how he felt about it.

In the end, I left him alone. Two weeks later, I’m still troubled about it.

Maybe I was appropriately sensitive to a guy who was just trying to get his workout in without attracting attention.

Or maybe I’d had a chance to establish a genuine connection with someone who could use support…and I blew it.

What would you have done?

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Bonus for Those Who Read to the Bottom


Balance issues are among the most common problems associated with Parkinson’s. I attend a tai chi class twice a week to work on my balance, and it’s a subject addressed frequently in my boxing classes.

Falls have not been a problem for me so far, and I feel pretty good about my balance. But I can’t compete with Henry “Crip” Heard.

Heard was a vaudeville dancer in the 1940’s and 1950’s. He lost one arm and one leg as a young adult when a train hit the car he was riding in. The performance you see below, from the 1949 film “Boarding House Blues,” starts out as if it might be a joke. Then it turns into a remarkable display of grace, leg strength, and proprioception.

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A lot of Black Sabbath and Ozzy Osbourne covers came my way after Ozzy’s death a few weeks ago. This one is particularly good.

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Whenever I hear the Beatles’ “I’ve Just Seen a Face,” I think of this.

8 responses to “Pardon Me”

  1. jchrisanthony Avatar

    Phil,
    It would be an on the spot, judgement call for me. The old adage “it takes one to know one” is true. I can recognize the symptoms—at least the most commonly visible ones—but the person may not have been diagnosed, or may be in denial. You just don’t know. And then, many people just can’t talk about their situation with strangers.

    Like

    1. shakinstreet.com Avatar

      I’m roughly 80% convinced that leaving him alone was the right call. Unless someone’s wearing an “Ask Me About My Parkinson’s” T-shirt, I’m inclined to keep my mouth shut.

      Liked by 1 person

      1. delightfullyd30d7762de Avatar
        delightfullyd30d7762de

        Phil, as bold as you were when you were a sales consultant, I find it hard to believe you shied away from an opportunity to engage with another apparent PD sufferer.  I recently had a similar experience where I simply made eye contact and questionly asked “Parkinson’s”?  He responded in the affirmative and a great conversation ensued.  We need to be bold.

        Yahoo Mail: Search, Organize, Conquer

        Liked by 1 person

      2. shakinstreet.com Avatar

        You’re not wrong, Ed. Although I’m 80/20 on the issue, that other 20% is what prompted me to make this post.

        Like

  2. Rita Avatar
    Rita

    here’s an idea: next time you go to the gym, wear YOUR “Ask Me About My Parkinson’s” t-shirt and saunter up to him with a friendly hello….he’ll either take the bait or he won’t. either way, you’ll have your answer on whether he would have liked your engagement on the topic….

    Like

    1. shakinstreet.com Avatar

      I’ll need to order the T-shirt first….

      Like

  3. […] Last week’s article on whether it’s okay to approach a stranger who may have Parkinson’s generated a great deal of discussion. I had conversations about this on the blog, on Facebook, on the Turnto app, and in person at my boxing and ping pong gatherings. […]

    Like

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I’m Phil Bernstein

I was diagnosed with Parkinson’s Disease on May 25, 2023. At the time, I was only vaguely aware of Parkinson’s — primarily from articles in People about Michael J. Fox. And I didn’t know anyone with the disease.

Now, I know a lot more about the illness, and I’ve joined the Parkinson’s community in my hometown of Portland, Oregon.

I’ve found that writing helps me think through challenges, and this illness definitely qualifies as a challenge. I’ve started Shakin’ Street to help me think through the various obstacles, tools, and resources that a newly-diagnosed Parkinson’s patient encounters along the way.

I hope some of these posts help you address and tackle your own challenges.

Let’s connect